Tuesday, June 21, 2016

My Baclofen Pump Maintenance



I had a baclofen pump implanted in my belly 4 years ago.  I have had great results maybe since I had taken baclofen pills for many many years. 

I was taking 80mg which is near the limit of 100mg, but after the pump it is only 57mcg of baclofen intermittently 24 hours a day.

It has relieved almost all spasticity which helps me to walk again with a walker.

The only maintenance is the pump has to be refilled every 6 months which means a big trip to Atlanta (happens to be tomorrow).  I take it serious since the results can be fatal if I do not get it refilled. 

Disclaimer:  I truly was relieved when Basic Home Infusion contacted me asking me to do a guest post on their blog.  Basic Home Infusion is the top nationwide intrathecal pump management service.  It is a relief to know of them since it could be very difficult to get to Atlanta twice a year for the rest of my life....all in all I have nothing to complain about!

Thursday, June 16, 2016

Can You See The Lizard?


I was outside cutting some fresh flowers when I saw a green lizard move!



I jumped out of my skin then I got my phone out......



Amazing how well it blends in!  (top left if you need a hint:))

Wednesday, June 8, 2016

My Blog is on a Best Blogs List



My blog is on  Healthline.com:  Best MS Blogs of the Year!

I never started out to be a MS blog...... as you can tell with a title like I have! 

 If I had spent more than 2 minutes on the name of my blog back in 2008.......it could have been a little more creative.  

I was thinking I am not a writer so what would I want to tell the world?   Be thankful cause it could be worse in a heartbeat! 

Just look around....it don't take long to see someone in worse shape than you are.

Monday, May 30, 2016

My Patriotic Grandson


I might be stretching my grandsons patriotism just a little because he is touching my "Marine Mom" tag.....

Earlier He was driving his race car on my Smart car!  I said calmly "you can't drive your race car on granny's race car"!

Boys and their toy cars!

Happy Memorial Day!


Wednesday, May 25, 2016

world MS day


Today is World MS Day!   

I have had a great life despite battling MS for 37 years.....and it's possible for others also!

Remember you are stronger than MS!

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