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Thursday, August 18, 2011

My MS continues to be Inactive

Net pic


I went to Shepherd's MS Institute in Atlanta for my yearly check up with an MRI scan of my brain (yep I still have a brain)......

The doc said "Your MS is still Inactive". 

That was great news to me but how do I have new pains such as a "burning sensation" in parts of my body?  and Leg spasms.

I cannot take the medicine they recommend for nerve pain during the day without being Loopy!

Thankfully I was sorta pain-free for 30 years with MS.  I just had to add my complaints or reality nowadays.

I will not complain much since I saw others in the MS Center that were much worse than I....and some were so young.....

If I have to have MS, then Inactive is the kind to have.
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27 comments:

  1. Lisa @ Two Bears FarmAugust 18, 2011 at 2:22 PM

    Even though you know it's still a struggle, inactive is good news - I'm happy for you! :-)

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  2. Chatty CroneAugust 18, 2011 at 2:27 PM

    Inactive is great news - but you still hurt with MS - I have a dear friend from college with it - Inactive - but she hurts too.

    Hugs.

    Gosh I am 40 minutes from the Spinal Center!

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  3. Debra She Who SeeksAugust 18, 2011 at 2:27 PM

    Long may it remain inactive!

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  4. Ginny HartzlerAugust 18, 2011 at 2:51 PM

    This is great news and I am so happy for you!! I hope it will continue this way for many years!!!!

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  5. JoanneAugust 18, 2011 at 3:21 PM

    God bless you! This is great news! I hope your pains go away.
    Blessings, Joanne

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  6. MadSnapper n BeauAugust 18, 2011 at 3:49 PM

    YIPEEE! Inactive it is, I am so happy to hear this. I will pray it is inactive, dead and GONE. sorry about the pains

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  7. DUTAAugust 18, 2011 at 5:21 PM

    Great news!, indeed! May your MS be inactive forever!

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  8. DebbieAugust 18, 2011 at 5:35 PM

    What a praise!

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  9. JudyAugust 18, 2011 at 5:39 PM

    Inactive. Hooray!!
    Judy

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  10. sprinklesAugust 18, 2011 at 6:00 PM

    Congrats!!! I'm so happy your MS is inactive, excellent news!

    I'm amazed at how many people around here have MS.

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  11. Elephant's ChildAugust 18, 2011 at 7:19 PM

    Inactive would be wonderful, but benign would be the best. One attack then gone for good. Sigh. And I met someone who fell into that category. I was so, so jealous.

    Isn't it weird that the docs can say 'inactive' and your legs and pain receptors say FAR TOO ACTIVE. Hopefully the pain will ease back and you will stay inactive.

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  12. KarenAugust 18, 2011 at 8:28 PM

    Inactive...what a great word to hear! Yay!

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  13. Betsy Banks AdamsAugust 18, 2011 at 10:18 PM

    Good for you, Kim... I'm so happy!!!! That's the best news you could hear!!!
    Hugs,
    Betsy

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  14. Flying high in the sky....August 19, 2011 at 8:34 AM

    good!! good!!! inactive!!

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  15. Toyin O.August 19, 2011 at 10:10 AM

    Praying it will remain inactive:) Have a restful weekend.

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  16. UnknownAugust 19, 2011 at 2:31 PM

    "still" inactive sounds even better than inactive - wishing you pain free inactive

    Caregivingly Yours, Patrick

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  17. AnneAugust 19, 2011 at 2:41 PM

    Inactive - congrats Kim :o) Some hate that word, but us MSers, we embrace it.

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  18. lindagraceAugust 19, 2011 at 3:05 PM

    Kim,
    I'm happy for you!! And I have the same questions! MS is also "inactive" in my body, so why can't I get over the problems that I have, you know the old damage? I also am starting to feel some pain in my feet when I'm sleeping at night~ What's with that? Like you, I know it could always be worse, but...
    Linda

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  19. LauraAugust 19, 2011 at 4:07 PM

    Inactive is great news...but I'm sorry you are experiencing that icky burning pain.

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  20. WandaAugust 19, 2011 at 6:33 PM

    May it remain in that state Kim.

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  21. AcheloisAugust 19, 2011 at 10:55 PM

    ditto to that which everyone else has said with regard to inactive. I have EDS not MS but sometimes the descriptions I read of symptoms are so very similar. I understand how utterly frustrating the pain you describe can be. U am supposed to take my neuropathic pain meds in the morning as well as at night but mostly I take them at night for the very same reasons you describe.

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  22. BARBIEAugust 20, 2011 at 2:53 AM

    Great news!

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  23. UnknownAugust 20, 2011 at 7:59 PM

    When I developed clonus (leg and arm spasms) burning and weakness in my legs the initial diagnosis was MS until MRIs revealed herniated disks and stenosis (restriction of the spinal cord) in my cervical spine. Surgery and meds did a fair job of alleviating the symptoms and I went back to work full time. Then a bad fall in '05 severely damaged my lumbar spine and I was forced into early retirement. A lot of the old symptoms came back with a vengeance but I had experience with the meds and was able to work with my doctors to come up with a suitable regimen. Still, when I pick up refills at the pharmacy it's not unusual for one of the pharmacists to ask if I have MS.

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  24. Nikki (Sarah)August 21, 2011 at 7:18 AM

    great news Kim.....and I echo what others said...may it always be inactive....

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  25. AnonymousAugust 22, 2011 at 7:13 AM

    Great compliments to you Kim! I admire the way you take life at courage. Take care dear :)

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  26. GlendaAugust 22, 2011 at 4:41 PM

    Inactive, in your case, is a beautiful word!! Great news!!

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  27. Ed PilollaAugust 24, 2011 at 1:14 PM

    i didn't know about inactive ms. very interesting journey...

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Thanks for taking the time to comment!